made it really hard to tell when I “finished” grad school and when I “started” being a community researcher, but in order to streamline my networks a little, I’ve created a newsletter for my colleagues and friends. Since the first one is all-encompassing, I figured I may as well share it here, too.
I’m coming out at the intersection of being neurodivergent and genderqueer…
Caregivers can give you all the evidence you need: people do not care about care.
It’s a personal narrative with citations. And maybe some theory. And some equivocating over the imperfections of memory. And maybe dead academics sharing a hot tub with the author.
Isolation, worry, boredom, disappointment, and hopelessness are not new to many caregivers, so how do we work around them?
Something I’m seeing (and personally struggling with) is that a lot of people who took the pandemic seriously (whether from the start or from learning the hard way) are being expected to start to make exceptions, or relax all at once, or just “trust” other people wholly. But brains don’t work that way. Brains adapt […]
There were a lot of twists and turns in those last few months, what with the global pandemic and usual grad school rigmarole, but my thesis was completed, defended, revised, and finally submitted this month. Before I go over some of those later experiences, this: “The Social Lives of Dementia Caregivers” is complete and available! […]
We are all long-distance caregivers now.
Greetings. We’re on Day 34 of isolation here. This is when a lot of those initial intentions and back-up plans start falling apart and you start to wonder what is even the point of making plans. Although the answers are not universal, please know that you are asking the right questions. It might surprise you, […]
To my surprise and relief, it seems people are talking about care. Mutual care, communal care, care of families, care about political constituents, self-care. At least some people are seeing what I’m seeing: We Are All Caregivers Now, and what comes after depends on how well we all care for one another now. In my […]
Theories of Care 